(bahman - 4 jaar en 7 maanden geleden)my daughter is now 35and sufferes from dravet syndrome.dravet not only destroying my daughters life. but the life of the whol familie we went and still going through the hell. we never had a life like other people everythings was and ist hard.there is no hope for us,no light at the end of tunnel.i feel that we are in a black holl and there is no scape